Copyright Translational Research Cancer Centers Consortium

Translational Research Cancer Centers Consortium

Translational Research Cancer Centers Consortium

Expediting Progress in Cancer Immunotherapy

BECOME A SURVIVOR ADVOCATE MEMBER


The Consortium invites participation by survivor research advocates in order to ensure the voice of the patient community is heard. Building on the inclusion of survivor advocates in the 2011 annual meeting, Consortium members believe that a robust dialogue between the research and patient communities will accelerate translational research.


Goals
  • Develop an ongoing relationship between TRCCC and  the advocacy community
  • Engage advocates and researchers in dialogue about immune approaches to cancer therapy 
  • Develop a pool of advocates to serve on research applications 
  • Encourage advocates to spread information gained at the meeting among their respective networks
  • Long-term, grow participation in clinical trials 
  • Leverage public policy/advocacy efforts for research and 
  • Encourage research-related philanthropy

Survivor Advocate Profile – What makes a good research advocate?  
  • Cancer survivors or co-survivors (individuals who have been intimately involved in the care and support of a cancer patient while undergoing the process of diagnosis and treatment) who are interested in contributing their voice to research are invited to attend. 
  • Advocates should be far enough removed in time for their own cancer experience to have the perspective to apply their own experience to speak broadly on behalf of the survivor community. 
  • Advocates are asked to complete a brief personal profile which will be shared with meeting participants. We will send you this questionnaire if you tell us you will be attending the meeting.  


Role & Expectations of Survivor Advocates 

Meeting organizers look to the advocates in attendance to represent a broad spectrum of the patient population as applicable to each advocate’s experience, knowledge and expertise. Advocates are encouraged to attend all sessions, participate fully in Q & A segments at each session and to engage in dialogue with meeting presenters and attendees. During or following the meeting, advocates may be requested by researchers to serve as an advocate on specific research applications. This involves getting a basic overview of the project, providing a letter of support and, if the project is funded, providing ongoing feedback during the course of the project.  
 
Prior to the meeting, we will provide a basic tutorial on immunology. During the meeting, a scientist mentor will join each advocate in sessions to help facilitate discussion and understanding. 


Financial Support 

Limited funds are available to underwrite advocate expenses. Please let us know as soon as possible if you are interested in participating in the meeting and requesting expense support. Decisions will be made on a first-come, first-served basis, giving priority to past attendees. Please email Ruth Modzelewski for more details, or to get involved. 

  • Registration – No charge
  • Resort Accommodations – No charge for Wednesday and Thursday nights, based on double occupancy with another advocate, to be assigned (includes Thursday and Friday breakfast in main dining room and lunch at conference meetings).   
    • If you prefer single occupancy, there will be an additional nonreimbursable nightly charge of $45 plus tax.
  • Travel Expenses – Reimbursable following the meeting up to $500, based on $.55/mile if driving or coach airfare*. Detailed receipts must be provided using expense reporting forms that will be emailed to you upon confirmation.
    • Free ground transportation from Pittsburgh International airport to the resort will be provided courtesy of University of Pittsburgh volunteers (may include wait time of up to 2 hours). Conference planners will help you with these arrangements. Alternative ground transportation is not reimbursable.