The Consortium invites participation by survivor research advocates in order to ensure the voice of the patient community is heard. Building on the inclusion of survivor advocates in the 2011 annual meeting, Consortium members believe that a robust dialogue between the research and patient communities will accelerate translational research.
Meeting organizers look to the advocates in attendance to represent a broad spectrum of the patient population as applicable to each advocate’s experience, knowledge and expertise. Advocates are encouraged to attend all sessions, participate fully in Q & A segments at each session and to engage in dialogue with meeting presenters and attendees. During or following the meeting, advocates may be requested by researchers to serve as an advocate on specific research applications. This involves getting a basic overview of the project, providing a letter of support and, if the project is funded, providing ongoing feedback during the course of the project.
Prior to the meeting, we will provide a basic tutorial on immunology. During the meeting, a scientist mentor will join each advocate in sessions to help facilitate discussion and understanding.
Click the button below to better understand the role of the patient advocate as an active member of the research team.
Limited funds are available to underwrite advocate expenses. Please let us know as soon as possible if you are interested in participating in the meeting and requesting expense support. Decisions will be made on a first-come, first-served basis, giving priority to past attendees. Please email Ruth Modzelewski for more details, or to get involved.
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Translational Research Cancer Centers Consortium